Testimony of a rebirth and gratitude.\u00a0(Or a happy story after the assessment of a disabling radionecrosis of the sternum)<\/p>\n
I am 70 years old and have been retired for 3 months after a life devoted to pediatrics. \u00a0On January 2, 1998, at the age of 49, I underwent surgery for right breast cancer followed by a 3-month radiotherapy treatment.\u00a0 Just after this radiotherapy at the end of April 1998, I suffered a 2nd degree burn on the thorax (anterior radiodermatitis) at the level of the irradiated zone and still today there is a scar with small-surface red varicose veins called\u00a0telangiectasias (spider veins).<\/p>\n
On December 1, 2001, during a train trip, I was thrown violently against the shelf of a toilet sink after a sudden braking.\u00a0 Despite the immediate pain in the sternum, the shock seemed minor.\u00a0On leaving the train, I felt very different, which was accentuated by driving back home without power steering! This was now 4 years after radiotherapy.<\/p>\n
By December 2001, the pain seemed under control, bearable, but any movement of the torso provokes it acutely.\u00a0 I was happy not to have breathing difficulties… I was sedentary and my activities were reduced thanks to the support of my entourage.\u00a0 Some improvement was felt by the end of the month.<\/p>\n
But in mid-January 2002, on the occasion of a hectic trip, the sternal pain came back and would not let go.\u00a0 It would take five additional months to rediscover arm or body mobilization without pain, without existing treatment other than paracetamol, caution and protection of my chest if necessary.<\/p>\n
Then finally, the sternum went SILENT for 16 years, except for its slight deformation that has never changed.<\/p>\n
But on April 10, 2018, during a consultation with a hospital rheumatologist who placed me uncomfortably on an examination table, my sternum woke up again when I got down from the table and the pain would not leave me anymore.\u00a0 It had now been 20 years since my\u00a0radiotherapy, with no relapse of cancer.\u00a0I was now 69 years old.<\/p>\n
The next 5 months would be very difficult, day and night, painful in the movements of the body at the slightest rotation, hindering not only dressing, but also my speech rate and my breathing at the slightest effort.\u00a0 Life then became very painful. I was looking for solutions…<\/p>\n
On September 6, 2018, I met Professor Sylvie DELANIAN and discovered the association ARSER.\u00a0 She offered me a treatment for osteoradionecrosis, combining three drugs (PENTOCLO) over 6 months, renewed in March 2019. Within one month, the treatment restored my mobility and enabled me to find a quality of\u00a0life… moving, breathing, getting dressed … living simply became a pleasure in the silence of the body… and it continues.<\/p>\n
I thank Professor Sylvie DELANIAN and the ARSER team who contribute to the research and recognition of these rare and unrecognized radionecrosis pathologies.<\/p>\n
Beatrice K.<\/p>","protected":false},"excerpt":{"rendered":"